RUBRIC stands for "Rational Use of Biologics in rare Refractory Immune-mediated inflammatory diseases (IMIDs) Consortium". It is an online registry that has been developed to evaluate the effectivity of modern types of medication, called biologicals. Frequently, these types of are being prescribed based on research investigating small cohorts due to the rarity of the disease for which they are described. With the RUBRIC registry we try to improve our knowledge about these types of medication.
What kind of research is this?
The RUBRIC (acronym for "Rational Use of Biologics in rare Refractory Immune mediated inflammatory diseases (IMIDs) Consortium") registry collects information on the safety and effectivity of the treatment with rare modern types of medication of various complicated and rare immune-mediated inflammatory diseases, like sarcoidosis in the Netherlands. An example of a type of medication that is being investigated in this registry is Infliximab. Because of the rarity of the diseases these types of medication treat, it is often difficult to research these agents adequately. Therefore, it is of uttermost importance to monitor the effectivity and safety of these treatments.
What do we expect of you?
During your visit of the AMC you can be asked to join our researchproject and contribute to the 'RUBRIC' registry. When you are not being treated in the AMC and you think you are being treated with a biological which is being investigated in this registry, ask your treating physician whether or not you can be included in this research project. As a patient you will be ask to fill in questionnaires about your daily life. Your treating physician can discuss the answers during your next visit to the outpatient clinic. You will receive an inlog name and password as soon as your doctor has registered you with the RUBRIC registry. This research project exists only of registration and does not involve any risks. For more information, please click on the button below. You will be transferred to the website of the RUBRIC registry. The website is in Dutch only.